Daniel has been cancer-free for 4 years after a colon resection and 6 months of chemotherapy. His doctor thought his inflamed colon might have been due to gluten, but testing for both Crohns and celiac disease were negative. This can be a common experience as too often not enough testing is offered to detect a problem with gluten. The patient may be told, “Gluten is not your problem,” when in reality it is. I spell the blood and stool testing out in chapters 16 & 17 that will very likely detect an issue with gluten if there is one.
About a month prior to surgery his naturopathic doctor tested him for antibodies to gluten and wheat protein. He was high on both and began giving up gluten, which most likely affected the negative outcome of the celiac testing he was offered.
He claims, “I didn’t know I had a problem. My only symptom was leaky gut, a symptom that I had had my whole life. I was diagnosed with leaky gut in college because of chronic abdominal cramps and constipation. Taking psyllium fiber helped, but never completely relieved the symptoms.” That’s because it was a band-aide and didn’t address the main issue: What was causing his symptoms?
Leaky gut is not a symptom; it is a disorder caused by something and can lead to huge illness. Too many patients (and their doctors) underplay abdominal pain and constipation. They come to believe it is a normal part of life. Had Daniel been given adequate testing for celiac disease and gluten intolerance and adhered to a GF lifestyle he might (probably would) have avoided the colon cancer.
Daniel “tries” to stick to the GF lifestyle, but finds it difficult when traveling, especially abroad. If he gets hit with gluten he immediately, within 30 seconds, becomes congested and begins clearing his throat. Digestive issues ensue: constipation and gas. These symptoms appear to be a clear sign of gluten causation. They are a reaction to a foreign body that his immune system recognizes as a threat.
I’m hoping when Daniel gets to the end of my book, Toxic Staple, he will realize the necessity to be absolutely gluten-free wherever in the world he may be if he cares about his future health. Restaurants can always come up with something GF. Yes, it’s a bother to ask too many questions, but it is most important to keep yourself safe from mini-hits of gluten that can continue to do internal damage. Restaurants are coming more on board, but travel with fruit, nuts, and GF crackers and bars, just in case.
There is no way I would ever consume gluten and I am not overly sensitive. That’s because I do have a handle on the devastating and degenerative diseases linked to gluten (a decade of research – 2000+ studies, writing, collecting success stories, and going to conferences). Do you? Please educate yourself on the myriad symptoms, diseases, and associated conditions linked to gluten by thousands of international studies, many of which you will find in my book, Toxic Staple. I wrote this book to empower you and your loved ones. Only an over-the-edge driven grandmother could spell it out as I have. And please read the endorsements at http://toxicstaple.com/endorsements/ suggesting doctors read my book.
Celiac disease is associated with a difficult to diagnose and difficult to treat form of lymphoma called enteropathy-associated T-cell lymphoma (EATL). Anyone with celiac disease needs to be diagnosed early and live a 100% gluten-free lifestyle to avoid this and other serious complications of celiac disease. It is suggested “that EATL should be regarded as part of differential diagnosis in any patient presenting with abdominal pain, diarrhea, weight loss, and malabsorption because delay in treatment can result in an irreversible clinical outcome.”*
EATL: Patients with this form of cancer may not have a good prognosis; they may have abdominal pain due to “a hole in the wall of the intestine,” or ulcers or a blockage. EATL can travel to the colon, gallbladder, liver, lymph nodes, skin, spleen, and stomach.** Thus, the need to detect gluten issues early and pay strict attention to the GF lifestyle.
If you or your child have been suffering from stomach pain and intestinal issues or any one of the over 300 issues linked to gluten you will get the full picture from Toxic Staple, especially the testing you need to detect intolerance or celiac disease. Make a copy of the testing info for your doctor, and do not keep putting it off. You need to keep eating gluten until you have the blood tests. Low or no gluten can skew blood test results. Some doctors don’t even ask about this.
Celiac disease is only a fraction of the gluten problem. What really matters is whether you are gluten-intolerant. If intolerant you should never consume this nasty destructive protein. It can do you in over time. Even the littlest bit can keep the internal damage happening if you are sensitive to gluten.
There is a strong message here for the reader. If you are suffering from any one or more gastrointestinal issues please address it by getting thoroughly tested for gluten issues (4 blood tests). You will need to advocate for yourself as there is still huge unawareness of adequate testing to detect a problem with gluten. Keep eating gluten until you have the blood tests. And if negative on blood testing don’t stop until you follow it up with Dr. Fine’s stool testing. I have no financial interest in his lab; I just strongly believe in his very sensitive testing. My whole family, except the really sick grandkid, was negative on blood testing yet positive on stool tests. Everyone’s health turned around once we got on a GF diet/lifestyle.
A fair bit of research exists on colon cancer and gluten.
Do you have a colon cancer/gluten or cancer/gluten story to share for the benefit of others. If so please send via my contact button above.
The next post will address gluten issues in Daniel’s family.
*Onco Targets Ther. 2016 Feb 22;9:863-8. doi: 10.2147/OTT.S96745. eCollection 2016. Type I enteropathy-associated T-cell lymphoma in the colon of a 29-year-old patient and a brief literature review. Zhang JC1, Wang Y1, Wang XF1, Zhang FX1.
**Non-Hodgkin Lymphoma: Enteropathy-associated T-cell Lymphoma http://www.cancer.ca/en/cancer-information/cancer-type/non-hodgkin-lymphoma/non-hodgkin-lymphoma/types-of-nhl/enteropathy-associated-t-cell-lymphoma/?region=on