You may find the resources listed below of particular help as you begin to learn more about gluten and its effects on the human body. As you begin your own research you will find that information about celiac disease and non-celiac gluten intolerance (CD/GI) is a never-ending, constantly changing river that grows and evolves as additional research brings new information to light.
Books about Gluten Sensitivity
Breaking the Vicious Cycle™, by Elaine Gottscall (2004)
a book about The Specific Carbohydrate Diet™ that may benefit those suffering from intestinal issues who are not able to digest carbohydrates well.
Celiac Disease: A Hidden Epidemic, by Dr. Peter H. Green and Rory Jones (2006; revised edition 2010) gives a thorough overview of celiac disease and explains how intimately the gut is connected to other organs and to major illness. An excellent read.
Cereal Killers: Celiac Disease and Gluten-Free A to Z, by Ron Hoggan, EdD, and Scott Adams (2010). (Adams is the founder of http:// www.celiac.com and the publishing company Watersideworks.) This collection of essays leaves no topic of gluten sensitivity untouched. The authors advocate for Dr. Kenneth Fine’s stool testing (http:// www.EnteroLab.com) and recognize the expanded view of gluten sensitivity beyond celiac disease.
Dangerous Grains: Why Gluten Cereal Grains May Be Hazardous to Your Health, by James Braly, MD, and Ron Hoggan, EdD (2002). This is an eye-opening book. Check out the appendix for a list of over 200 symptoms and maladies connected to gluten. Hoggan is dedicated to spreading the word about the nasty and degenerative effects of gluten.
Get the Iron Edge, by Ron Hoggan, EdD, Watersideworks (2008) explains iron deficiency: how it affects learning, memory, and health; the tests necessary to detect it; and how to correct it naturally.
The Gluten Connection: How Gluten Sensitivity May Be Sabotaging Your Health, by Shari Lieberman, PhD, CNS, FACN (2007) explains the negatives associated with traditional blood testing for CD. The author gives great credence to the stool testing at EnteroLab and speaks of Dr. Aristo Vojdani’s extensive research. More great information.
The Gluten-Free Bible, by Jax Peters Lowell (2005) is an indispensable book for those embarking on a gluten-free diet (GFD). It covers many aspects of living a gluten-free (GF) lifestyle.
The Gluten Syndrome, by Dr. Rodney Ford (2007) asserts that gluten may cause numerous disorders involving 10 different organs, not just the gut. Many of Dr. Ford’s patients test negative for gluten in the intestine but positive for gluten antibodies. Check out his website, http://www.doctorgluten.com, for more great information and easy-to-read books.
Recognizing Celiac Disease, by Cleo Libonati (2007) is a comprehensive, well-documented work listing more than 300 signs, symptoms, and associated disorders linked to gluten. This book should be on the desk of health care professionals in every discipline of medicine. It is an easy-to-use tool for anyone who has health issues or is interested in disease prevention.
Wheat Belly, by William Davis, MD (2011) documents the history of wheat from the time of early man. Dr. Davis reveals the drastic changes that have taken place over the last 50 years in genetically modifying wheat so it contains more gluten. He also explains the effect wheat has on our metabolism and its role in the development of numerous degenerative diseases.
Wheat Free, Worry Free, by Danna Korn (2001) is filled with information. The author, a driven mom who has become an authority on gluten sensitivity, has also written Kids with Celiac Disease (2001) and Living Gluten Free for Dummies (2006).
Books about a Gluten-free Diet
The G-Free Diet: A Gluten-Free Survival Guide, by Elisabeth Hasselbeck (2009) contains everything you need to know to lead a gluten-free lifestyle.
Gluten-Free Diet: A Comprehensive Resource Guide-Expanded and Revised Edition, by Shelley Case (2010) Gluten-Free Nutrition Guide, by Tricia Thompson (2008)
Gluten Free Living—http://www.glutenfreeliving.com
Websites about Gluten Sensitivity/Research
Celiac.com—http://www.celiac.com, created by Scott Adams, provides a wealth of information written by open-minded doctors and advocates, including substantial information on every aspect of celiac disease and non-celiac gluten intolerance.
The Gluten File—http://www.theglutenfile.com, by storyteller Cara, provides significant updated research and an expanded list of more forward-thinking doctors. Excellent site.
The Gluten Syndrome—http://www.theglutensyndrome.net, offers valuable information. The site is authored by Olive Kaiser, a dedicated advocate who works tirelessly to educate doctors and the public about the dangers of gluten. Another must-read.
X-Gluten.com—http://www.x-gluten.com was created by Anne Sarkisian to highlight important information about testing for celiac disease and non-celiac gluten intolerance.
The following forward-thinking doctors support antigliadin antibody (AGA) testing that may detect a sensitivity to gluten beyond Celiac Disease.
Kenneth Fine, MD: http://www.EnteroLab.com and http://www. FinerHealth.com. Early Diagnosis of Gluten Sensitivity: Before the Villi are Gone is a must-read essay on the superiority of stool testing. (See http://www.finerhealth.com/Essay/.)
Rodney Ford, MD: http://www.drrodneyford.com/extra/doctor-gluten. html
Marios Hadjivassiliou, MD: You will find most of his research at https://sites.google.com/site/jccglutenfree/halloffame.
Scot Lewey, MD:
• ezinearticles.com/?Diagnosing-Celiac-Disease-and-Gluten- Sensitivity&id=239028
• http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A- Gastroenterologists-Personal-Journey-Down-the-Gluten- Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html
Thomas O’Bryan, DC: http://www.youtube.com/watch?v=BhHwq8eErxs
Aristo Vojdani, PhD: “NeuroImmunology: From Leaky Gut to Leaky Brain” at www.publichealthalert.org/Articles/scottforsgren/ neuroimmunology.htm
Websites about a Gluten-free Diet
Beth Israel Deaconess Medical Center—http://www.bidmc.org/ celiaccenter offers useful information for gluten-sensitive individuals under “Basics of the Gluten Free Diet.”
Canadian Celiac Association—http://www.celiac.ca/pdfs/gfdiet.pdf offers an excellent explanation of grains and other food products as well as lists of safe and unsafe foods, GF substitutions, and more.
Celiac.com—http://www.celiac.com has safe and unsafe lists, alternative flour information, cooking tips, recipes, informative articles, and much more.
Celiac Sprue Association—http://www.CSAceliacs.org is the place to order the CSA Gluten-Free Product Listing, which is updated annually. This book includes lists of thousands of GF products, safe and unsafe foods, GF companies, alternative flours, 800 numbers for many food companies, and more.
Gluten Intolerance Group (GIG)—http://www.gluten.net/learn/gluten- free-diet.aspx offers “The Gluten-Free Diet Nutrition Guide,” by Cynthia Kupper, Executive Director of GIG, free for downloading. GIG sponsors a gluten-free food service awareness program at http://www.glutenfreerestaurants.org/. Here you can find out which restaurants around the country have gone through the training.
Healthy Villi—http://www.healthyvilli.org is an advocate for the celiac community of New England. This site contains a helpful list of New England restaurants catering to those on a GFD.
Other Websites of Note (a few of many)
American Celiac Disease Alliance—http://www.americanceliac.org/ about-us/ (Spanish available)
Autism Network for Dietary Intervention (ANDI)—http://www. autismndi.com/
Celiac Disease Foundation (CDF)—http://www.cdfresourcedirectory. com offers a directory of gluten-free resources.
Food Allergy and Anaphylaxis Network—http://www.foodallergy.org/
GFCF [Gluten Free/Casein Free] Diet Intervention—Autism Diet— http://gfcfdiet.com/
Gluten-Free Drugs—http://www.glutenfreedrugs.com/ (scroll down)
It’s Not Mental—http://itsnotmental.blogspot.com/
My Brain Health—http://www.mybrainhealth.org/files/Gluten- induced_neurological_disease_Feb_8_2011.pdf is a power point presentation on how gluten can affect the brain in numerous ways, ranging from inattention to seizures.
Recognizing Celiac Disease—http://www.recognizingceliacdisease. com/21.html “contains over 300 Signs, Symptoms, Associated Disorders and Complications directly or indirectly resulting from celiac disease.”
Unlocking the Mystery of Wheat and Gluten Intolerance, by Dr. Thomas O’Bryan and Sueson Vess substantiates the devastating effects of gluten with some great research—a must-see DVD.
National Support Groups
CCA: Canadian Celiac Association—http://www.celiac.ca
CDF: Celiac Disease Foundation—http://www.celiac.org
CSA: Celiac Sprue Association—http://www.csaceliacs.org
GIG: Gluten Intolerance Group of North America— http://www.gluten.net
NFCA: National Foundation for Celiac Awareness— http://www.celiaccentral.org
Many countries have national support groups.
Education and Research Centers
Celiac Center at Beth Israel Deaconess Medical Center http://bidmc.org/CentersandDepartments/Departments/DigestiveDiseaseCenter/CeliacCenter.aspx
Celiac Disease Center at Columbia University http://www.celiacdiseasecenter.org
Celiac Disease Clinic at Mayo Clinic http://www.mayoclinic.org/celiac-disease/
Massachusetts General Hospital Celiac Research Center http://www.celiaccenter.org/
University of Chicago Celiac Disease Program http://www.cureceliacdisease.org