Resources

You may find the resources listed below of particular help as you begin to learn more about gluten and its effects on the human body. As you begin your own research you will find that information about celiac disease and non-celiac gluten intolerance (CD/GI) is a never-ending, constantly changing river that grows and evolves as additional research brings new information to light.

Books about Gluten Sensitivity

Breaking the Vicious Cycle™, by Elaine Gottscall (2004)
a book about The Specific Carbohydrate Diet™ that may benefit those suffering from intestinal issues who are not able to digest carbohydrates well.

Celiac Disease: A Hidden Epidemic, by Dr. Peter H. Green and Rory Jones (2006; revised edition 2010) gives a thorough overview of celiac disease and explains how intimately the gut is connected to other organs and to major illness. An excellent read.

Cereal Killers: Celiac Disease and Gluten-Free A to Z, by Ron Hoggan, EdD, and Scott Adams (2010). (Adams is the founder of http:// www.celiac.com and the publishing company Watersideworks.) This collection of essays leaves no topic of gluten sensitivity untouched. The authors advocate for Dr. Kenneth Fine’s stool testing (http:// www.EnteroLab.com) and recognize the expanded view of gluten sensitivity beyond celiac disease.

Dangerous Grains: Why Gluten Cereal Grains May Be Hazardous to Your Health, by James Braly, MD, and Ron Hoggan, EdD (2002). This is an eye-opening book. Check out the appendix for a list of over 200 symptoms and maladies connected to gluten. Hoggan is dedicated to spreading the word about the nasty and degenerative effects of gluten.

Get the Iron Edge, by Ron Hoggan, EdD, Watersideworks (2008) explains iron deficiency: how it affects learning, memory, and health; the tests necessary to detect it; and how to correct it naturally.

The Gluten Connection: How Gluten Sensitivity May Be Sabotaging Your Health, by Shari Lieberman, PhD, CNS, FACN (2007) explains the negatives associated with traditional blood testing for CD. The author gives great credence to the stool testing at EnteroLab and speaks of Dr. Aristo Vojdani’s extensive research. More great information.

The Gluten-Free Bible, by Jax Peters Lowell (2005) is an indispensable book for those embarking on a gluten-free diet (GFD). It covers many aspects of living a gluten-free (GF) lifestyle.

The Gluten Syndrome, by Dr. Rodney Ford (2007) asserts that gluten may cause numerous disorders involving 10 different organs, not just the gut. Many of Dr. Ford’s patients test negative for gluten in the intestine but positive for gluten antibodies. Check out his website, http://www.doctorgluten.com, for more great information and easy-to-read books.

Recognizing Celiac Disease, by Cleo Libonati (2007) is a comprehensive, well-documented work listing more than 300 signs, symptoms, and associated disorders linked to gluten. This book should be on the desk of health care professionals in every discipline of medicine. It is an easy-to-use tool for anyone who has health issues or is interested in disease prevention.

Wheat Belly, by William Davis, MD (2011) documents the history of wheat from the time of early man. Dr. Davis reveals the drastic changes that have taken place over the last 50 years in genetically modifying wheat so it contains more gluten. He also explains the effect wheat has on our metabolism and its role in the development of numerous degenerative diseases.

Wheat Free, Worry Free, by Danna Korn (2001) is filled with information. The author, a driven mom who has become an authority on gluten sensitivity, has also written Kids with Celiac Disease (2001) and Living Gluten Free for Dummies (2006).

Books about a Gluten-free Diet

The G-Free Diet: A Gluten-Free Survival Guide, by Elisabeth Hasselbeck (2009) contains everything you need to know to lead a gluten-free lifestyle.

Gluten-Free Diet: A Comprehensive Resource Guide-Expanded and Revised Edition, by Shelley Case (2010) Gluten-Free Nutrition Guide, by Tricia Thompson (2008)

Periodicals

Gluten Free Livinghttp://www.glutenfreeliving.com

Living Withouthttp://www.livingwithout.com

Websites about Gluten Sensitivity/Research

Celiac.comhttp://www.celiac.com, created by Scott Adams, provides a wealth of information written by open-minded doctors and advocates, including substantial information on every aspect of celiac disease and non-celiac gluten intolerance.

The Gluten Filehttp://www.theglutenfile.com, by storyteller Cara, provides significant updated research and an expanded list of more forward-thinking doctors. Excellent site.

The Gluten Syndromehttp://www.theglutensyndrome.net, offers valuable information. The site is authored by Olive Kaiser, a dedicated advocate who works tirelessly to educate doctors and the public about the dangers of gluten. Another must-read.

X-Gluten.comhttp://www.x-gluten.com was created by Anne Sarkisian to highlight important information about testing for celiac disease and non-celiac gluten intolerance.

Doctors
The following forward-thinking doctors support antigliadin antibody (AGA) testing that may detect a sensitivity to gluten beyond Celiac Disease.

Kenneth Fine, MD: http://www.EnteroLab.com and http://www. FinerHealth.comEarly Diagnosis of Gluten Sensitivity: Before the Villi are Gone is a must-read essay on the superiority of stool testing. (See http://www.finerhealth.com/Essay/.)

Rodney Ford, MD: http://www.drrodneyford.com/extra/doctor-gluten. html

Marios Hadjivassiliou, MD: You will find most of his research at https://sites.google.com/site/jccglutenfree/halloffame.

Scot Lewey, MD:
ezinearticles.com/?Diagnosing-Celiac-Disease-and-Gluten- Sensitivity&id=239028
http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A- Gastroenterologists-Personal-Journey-Down-the-Gluten- Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html

Thomas O’Bryan, DC: http://www.youtube.com/watch?v=BhHwq8eErxs

Aristo Vojdani, PhD: “NeuroImmunology: From Leaky Gut to Leaky Brain” at www.publichealthalert.org/Articles/scottforsgren/ neuroimmunology.htm

Websites about a Gluten-free Diet

Beth Israel Deaconess Medical Centerhttp://www.bidmc.org/ celiaccenter offers useful information for gluten-sensitive individuals under “Basics of the Gluten Free Diet.”

Canadian Celiac Associationhttp://www.celiac.ca/pdfs/gfdiet.pdf offers an excellent explanation of grains and other food products as well as lists of safe and unsafe foods, GF substitutions, and more.

Celiac.comhttp://www.celiac.com has safe and unsafe lists, alternative flour information, cooking tips, recipes, informative articles, and much more.

Celiac Sprue Associationhttp://www.CSAceliacs.org is the place to order the CSA Gluten-Free Product Listing, which is updated annually. This book includes lists of thousands of GF products, safe and unsafe foods, GF companies, alternative flours, 800 numbers for many food companies, and more.

Gluten Intolerance Group (GIG)http://www.gluten.net/learn/gluten- free-diet.aspx offers “The Gluten-Free Diet Nutrition Guide,” by Cynthia Kupper, Executive Director of GIG, free for downloading. GIG sponsors a gluten-free food service awareness program at http://www.glutenfreerestaurants.org/. Here you can find out which restaurants around the country have gone through the training.

Healthy Villihttp://www.healthyvilli.org is an advocate for the celiac community of New England. This site contains a helpful list of New England restaurants catering to those on a GFD.

Other Websites of Note (a few of many)

American Celiac Disease Alliancehttp://www.americanceliac.org/ about-us/ (Spanish available)

Autism Network for Dietary Intervention (ANDI)http://www. autismndi.com/

Celiac Disease Foundation (CDF)http://www.cdfresourcedirectory. com offers a directory of gluten-free resources.

Food Allergy and Anaphylaxis Networkhttp://www.foodallergy.org/

GFCF [Gluten Free/Casein Free] Diet Intervention—Autism Diethttp://gfcfdiet.com/

Gluten-Free Drugshttp://www.glutenfreedrugs.com/ (scroll down)

It’s Not Mentalhttp://itsnotmental.blogspot.com/

My Brain Healthhttp://www.mybrainhealth.org/files/Gluten- induced_neurological_disease_Feb_8_2011.pdf is a power point presentation on how gluten can affect the brain in numerous ways, ranging from inattention to seizures.

Recognizing Celiac Diseasehttp://www.recognizingceliacdisease. com/21.html “contains over 300 Signs, Symptoms, Associated Disorders and Complications directly or indirectly resulting from celiac disease.”

DVD

Unlocking the Mystery of Wheat and Gluten Intolerance, by Dr. Thomas O’Bryan and Sueson Vess substantiates the devastating effects of gluten with some great research—a must-see DVD.

National Support Groups

CCA: Canadian Celiac Associationhttp://www.celiac.ca

CDF: Celiac Disease Foundationhttp://www.celiac.org

CSA: Celiac Sprue Associationhttp://www.csaceliacs.org

GIG: Gluten Intolerance Group of North Americahttp://www.gluten.net

NFCA: National Foundation for Celiac Awarenesshttp://www.celiaccentral.org
Many countries have national support groups.

Education and Research Centers

Celiac Center at Beth Israel Deaconess Medical Center http://bidmc.org/CentersandDepartments/Departments/DigestiveDiseaseCenter/CeliacCenter.aspx

Celiac Disease Center at Columbia University http://www.celiacdiseasecenter.org

Celiac Disease Clinic at Mayo Clinic http://www.mayoclinic.org/celiac-disease/

Massachusetts General Hospital Celiac Research Center http://www.celiaccenter.org/

University of Chicago Celiac Disease Program http://www.cureceliacdisease.org

Support Forums

http://www.Braintalkcommunities.org

http://www.Neurotalk.psychcentral.com