Category Archives: Scenarios of Illness

Scenario 3: Weight Gain, ADHD, Brain Fog, Mucus, Lungs, Atrial Fib, Cardiomyopathy, and Skin Issues

It amazes me how prevalent gluten issues seem to be. On my way to Denver, once again, I jotted some notes. Mind you, I did not request to be seated next to people who had health issues that very well could be or are linked to gluten. In only one example below did the person know she was intolerant to gluten or had celiac disease; the others had no idea the ailments mentioned could be from gluten and perhaps dairy. Certainly there is enough research in my book discussing such connections to gluten, not to mention stories of lives turning around by going GF, that anyone with these symptoms or ailments might want to take testing seriously. It seems life only gets worse if gluten related issues are ignored.

As usual I always suggest requesting the 4 blood tests you will find spelled out in Chapter 16 and if negative on those or if they are not covered by insurance don’t stop until you read Chapter 17 and do the very sensitive stool tests (not your ordinary lab/hospital tests, but a patented specific test that will likely detect intolerance if it exists). Try to find a doctor who is familiar with gluten issues, and bring your list of tests or you probably won’t get enough to discover celiac or intolerance to gluten.

  • On the first leg to Denver I chatted with a woman who had weight issues. I relayed to her that many folks I’ve spoken with dropped 10-40 lbs. without trying by following a gluten-free lifestyle. The weight just sort of peeled off in nearly every case. I lost 10-15 myself without trying. There is scant research backing this up (because little has been done), but there is one study basically saying those people who are so thin due to celiac weight-loss begin to put weight on when the gut heals and those who are overweight begin to lose it.* Also, her grandson who was very smart was also very hyper. I mentioned a couple stories on ADD/ADHD and heavily suggested the parents get the child tested. But it’s the same old story: you need to know what to ask for or you probably won’t get enough testing and may be told you don’t have a problem with gluten when in fact you may be quite gluten intolerant.
  • On the second leg to Denver I sat next to a woman who ate no grains. If she gets hit with a grain her head becomes foggy, ears plug up, she fills up with mucus and her lungs feel heavy. It takes 1-2 weeks for symptoms to lift.
  • On the first leg back to NE I sat with a woman whose son died of cardio issues while running a race. Research exists in Toxic Staple on one form of atrial fib and cardiomyopathy that will resolve with a GF diet.** You will also find a few studies on heart disease. Of course, so much more research needs to done. It wouldn’t be difficult to take a hundred newly diagnosed patients with atrial fib or cardiomyopathy and ask them if they were offered testing for gluten-related issues. My educated guess would be less than 5%…and that’s being generous. Testing for gluten-related illness should be at the top of the list in my estimation; there is just too much bad health linked to gluten and so little is being done to educate our doctors.
  • On the leg back to New England I sat next to a young woman who was dealing with facial skin problems. So many skin problems can be linked to gluten and/or dairy as discussed in Chapter 11: The Skin You’re In. I mention nearly 20 skin disorders that you never heard of before, and it’s very likely barely 5% (that’s being generous again) of skin specialists have heard of their link to gluten. Skin issues can be a sign of unwellness, and many of them will clear up or get miles better once your gut heals with a GF lifestyle.

The purpose of these scenarios is to make the reader aware of some of the numerous and varied symptoms and maladies linked to gluten so they can become empowered to be their own advocate in conjunction with their doctors in seeking better health. Your best health lies in your very own hands.

* A new study concluded that a GFD “had a beneficial impact on BMI [body mass index]; underweight patients gained weight (66%) and overweight/obese patients (54%/47%) lost weight. The improvement in BMI adds to the impetus to diagnose celiac disease.” [from Toxic Staple page 71.)

  • Cheng, J., P. S. Brar, A. R. Lee, and P. H. Green. “Body Mass Index in Celiac Disease: Beneficial Effect of a Gluten-free Diet.” Journal of Clinical Gastroenterology 44, no. 4 (2010): 267–71.

** “In addition to patients with chronic anemia of unclear origin, those with rhythm disturbances and myocardiopathies of unknown etiology should be tested for antiendomysial and antigiladin antibodies because, if positive, could indicate the presence of celiac disease.”

  • Callejas Rubio, J. L., N. Ortego, A. Diez-Ruiz, J. Guilarte, and J. De la Higuera-Iorres. “Celiac Disease Presenting as Chronic Anemia Associated with Heart Block.” American Journal of Gastroenterology 93 (1998): 1391–92.

 

Scenario 2: Arthritis, Weight Gain, Skin Lesions, Iron Deficiency, and Not Enough Testing

These scenarios all took place within about ½ hr. on Oct. 3rd on a trip to the grocery store. I expect each is connected to gluten.

Today I met B. in the parking lot and hadn’t seen her for a while so I went over to say hello. She was having a time getting out of the car, but was still driving and using a cane. She mentioned she had arthritis and was doing the GF diet, but cheats “once in a while.” Her disabling arthritis is somewhat better….she explained. “I wouldn’t even be able to walk if I weren’t on the diet,” she exclaimed. I wondered how much better she might feel if she didn’t cheat and tried to stress being 100% GF.

I received news about several people struggling with arthritis that read my book and took it seriously by doing the GF diet. Their arthritis was 95% better. Arthritis is an autoimmune disease and autoimmune diseases are highly linked to gluten. It is important to know if you are intolerant to gluten or have celiac disease; seeing it in black and white will really help you stay on the diet.

I also met a young man whose girlfriend tested negative for celiac disease. She endured intestinal issues and was told she needed to do the “low fodmap” diet…which “eliminates just about everything,” he said. He thought she only had the tTG and wasn’t tested for gluten intolerance. He was very appreciative of my info and was going to pass it on.

Ten minutes later I overheard two women talking about weight lose. I excused myself for butting in and mentioned that often people who have celiac disease lose 10-12 lbs.…even 30-40 lbs. without trying once they remove the toxic staple. They were both very interested in my topic and glad I shared my card with them. One woman mentioned she was taking iron pills. I asked if her doctor ever questioned why she needed iron or did s/he offer to test for celiac. No! That’s why I wrote my book. She wanted to know where to get the book and was most interested. Hoping she’ll get back to me with a success story.

As I was pulling out of the parking lot I noticed a woman intrigued by my number plate, XGLUTEN, so I rolled the window down for a chat. She was off sugar and gluten. Her doctor said her psoriasis and actinic keratosis, precancerous skin lesions, were better than he’d seen in 10 years. And she lost 5-6 lbs.

Skin issues can signify an unhealthy body. Numerous multisyllabic skin diseases that can respond to a gluten-free lifestyle are mentioned in Chapter 11: The Skin You’re In. Dairy is often another protein linked to skin issues.

Whether you have arthritis, excess weight, iron deficiency, intestinal issues, or skin lesions, you may very well have celiac disease or be somewhere on the continuum of intolerance to gluten. Unfortunately, too often, not enough testing is being offered to track it down and the patient is told they don’t have a problem with gluten. I explain testing and present the research and stories to back it up.
It is very important to detect gluten intolerance if it exists whether it’s affecting your gut, joints, skin, or some other part of your body. You are in the drivers seat and you too may be able to turn your health around as my family and I did.

Download your Free Report on The Hazards of Gluten at the top right corner above. Read the endorsements on my site above saying doctors should read my book.

Please get back to me with your success story at: anne(at)toxicstaple.com.

Scenario 1: Amazing Variety of Illness and Disease

Please keep your “sick and tired” friends and their children in mind as you read this.

On a recent trip to Denver I ran into several scenarios that you or a friend might relate to. I am trying to open your eyes as to how pervasive gluten intolerance is. We drove a lot and if I had occasion to talk to someone along the way about my book and the hazards of gluten, I did. Now I didn’t talk to that many people and I was shocked at the numbers already doing the GF diet and those who had no idea that gluten could be linked to their ailments/symptoms.

  • I spotted a rib-thin child with circles under his eyes and a narrow chin (these can be typical signs of classic celiac disease); he was traveling with his parents and two siblings. We were on the concourse train at the airport so time was limited. I immediately introduced myself, and the subject matter of Toxic Staple to the mom and said, “I’m pleading with you to read the information in my book,” as the train drew near the last stop and I handed her my card. She didn’t say the child had been tested and we didn’t have time to get into any other issues he might have been experiencing (fatigue, achy muscles and bones, irritability, hungry all the time, belly ache, intestinal issues, etc.). This parent will need to be armed with testing info I spell out in the book, since the child’s doctor obviously hadn’t offered testing, or if s/he did, it wasn’t enough. I realized later I had one book with me and I was kicking myself that I hadn’t given it to her.
  • This same mom, as we were heading to the escalator, told me of a family of 4 children who were all having issues. Two were hallucinating and on psychotropic drugs; I didn’t have time to find out about the other children. Yes, psychoses and many other neurological/cerebral issues are linked to gluten. The children are off gluten and off the drugs and doing fine. I am hoping to hear back about them. (Never stop taking prescribed meds without consulting your doctors. Please see disclaimer above at http://www.toxicstaple.com). My neurological chapter is the longest in the book and links many neuro problems to gluten with great research from around the world. The All American Diet is doing terrible things to our kids and their families.
  • I met another mom whose daughter had mouth sores and was very anxious. She was pale and unwell from about the age of 8 (a teen now I think) and was diagnosed with Behcet’s disease. There is little research linking Behcet’s to gluten however it is listed on page 146 in Toxic Staple as one of many manifestations of celiac disease (Abenavoli et al, 2006). I am praying she follows through with the cutting-edge testing in my book; it is a terrible disease. This kid’s life might drastically change for the better if celiac disease or gluten intolerance was uncovered and a strict GF lifestyle was followed. Behcet’s is one of about 20 eight-syllable skin diseases you never heard of that are linked to gluten—along with eczema and psoriasis.
  • One woman whose husband was a chiropractor said her family was gluten, dairy, and bean-free because of the negative affects of these proteins on many people. If she gets a little gluten a rash develops on her hands.
  • Another woman at the airport was in a wheelchair (late 60’s early 70’s). The doctors told her she would never walk again after falling and smashing leg bones, and maybe the hip. She gets around fine, but needs help when traveling. She is on a GF diet. Osteoporosis can be a sign of celiac disease. The problem is you don’t know it until you break your hip or some other bone.
  • Another woman on GF/DF/yeast-free diet needed 14 hrs. sleep and a nap and didn’t wake up feeling rested and about 6 hrs. after dinner the heat would come on like she was on fire. She gets an itchy rash under her breasts if hit with gluten.
  • Another woman told me she had swollen ankles like she might have had congestive heart failure, she couldn’t lose weight, and had hypothyroid. She was doing great on a GF lifestyle except for the dystonia, muscular spasms affecting speech. She didn’t think dystonia was linked to gluten, but I expect it is. Numerous neuro/muscular issues are linked to gluten and much more research is needed. You will find some “brain talk” communities and enough neuromuscular research to make you wonder.
  • On one flight I heard two women talking. One was into infertility research. Wished I’d been sitting beside her because there is huge research linking celiac disease to infertility, sterility, miscarriages, lousy PMS, and numerous other women’s and pregnancy issues. But is anyone educating our doctors? The young mother next to her was talking about ADD and one youngster in the hospital. The neuro chapter has stories on ADD/ADHD, autism (an incredible story) and Asperger’s. Our poor kids don’t have much of a chance with the tainted, overly processed, high gluten/dairy diet they are being feed along with the plastics and chemicals that permeate our food.
  • One retired nurse told me her whole office follows a GF lifestyle and everyone feels better. Her husband chimed in and said his sister’s life has been totally transformed by going GF.
  • Another woman told me her very good friend is having a terrible time even though she follows a GF/DF and I think a couple other proteins are out too. It is important to detect gluten issues early and address them with an absolute diet. Some people who have a difficult time responding to the GF diet probably have a gut that is very out of whack with a destroyed gut biome. They may have other issues they need to clear up before the gut will heal.
  • One woman said she and her family ate little gluten. “Why,” I asked? “Everyone feels better,” she answered. She mentioned that she was having a problem with mold. She was still getting some gluten in her diet. Since she has been doing low gluten the blood tests won’t work so I suggested she get tested with the specialized stool test (Chapter 17). These stool tests are very sensitive and saved my family, as we were all negative on the blood tests. If positive she needs a 100% GF diet. I expect her mold problem will clear up. Mine did, along with a bunch of other allergies.

Gluten is hugely affecting our population and those around the world. You must empower yourself by getting educated on the hazards of gluten. Request the panel of blood tests if you are having health issues. If negative on the blood tests then do the stool testing. (Chapters 16 & 17)